Remember to Take Kuvan, PKU Formula with RxmindMe

RxmindMe IconIt is probably safe to assume that most, if not all, PKU patients do not want their genetic disorder to define who they are as a person. Instead, we attend school, hold down jobs, and engage in hobbies just like people without PKU. There is no denying, however, that PKU patients must juggle these activities while also managing their low-protein diets. Well, as the popular saying goes, “there’s an app for that!”

The app, which is called RxmindMe, is available for free on iTunes and includes several different types of reminders, including:

  • Every “x” number of days
  • Hourly
  • Daily
  • Weekly
  • On specific days (like say the 15th of every month)
  • Spontaneous (recording medication that was taken as needed as opposed to scheduled)
  • Prescription quantity (to remind you when it is time to order a refill)

Users can also export their prescription data into Excel or email their prescription history directly from their phone. This seems like an awesome feature for when you find yourself in a doctor’s office and have to list all the current medications you are taking. It is also nice to know that all data within RxmindMe is connected to the U.S. Food and Drug Administration’s database so that you can search for your drug(s) and perhaps investigate possible side effects or hazardous drug interactions.

RxmindMe, Kuvan Reminder, PKU ReminderPKU patients can use RxmindMe to enter reminders for taking Kuvan, formula or even non-PKU meds like allergy pills, antacids and contraception. There’s no limit to how many reminders you can enter. For those parents with PKU kids, getting them involved with creating the reminders on the iPhone or iPad might even encourage them to be more independent in their treatment.

Finally, for those of you into social media, follow RXmindMe on Twitter—their Twitter handle, or name, is @RxmindMe—so you can get updates and tips for using the application.



Filed under Formula, Kuvan, Lo-pro Diet Management, Technology

3 responses to “Remember to Take Kuvan, PKU Formula with RxmindMe

  1. Billy

    Have you responded to Kuvan? If so how much Phe can you have in a day now? If you have not responded I heard a rumor in a convention I was at in Knoxville (I believe you attended this as well). I had heard they were working on Kuvan that was stronger or formulated different that almost guaranteed people to respond. I did some research on this and came up with nothing. I was wondering if you have heard or know anything about this?
    Thank you

    • Hey Billy! I’m not completely sure if I was there. I went to a Chattanooga conference though & I remember the hosts talking about a new PKU drug – maybe PegPal? – that was very promising. It was something that you injected. But I think it is still in clinical trials, whatever it is. Please stop by often though. Good to hear from you!

  2. Pingback: Returning to the PKU Diet—Easy Does It! | PKU Parlor

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